The crucial role of communication in managing the long-term health impact of cancer
Keywords:
doctor-patient communication, long-term adverse effects, cancer, cancer patients, health information, RomaniaAbstract
Patients with cancer often do not have an understanding of how cancer and its treatments can impact their long-term health. This varies depending on the type and stage of cancer as well as the specific treatments received.
Effective communication between doctors and patients plays a significant role in dealing with these long-term health effects. Physicians should offer information to patients about the potential long-term consequences of cancer and its treatments as well as discuss ways to manage these effects.
The main goal of this research was to examine how communication between cancer patients and their doctors influences the management of long-term effects on overall health.
A quantitative study was carried out involving members of four support groups for individuals affected by cancer and their families on Facebook. Participants were chosen from these groups for a sectional survey where they were asked to fill out a detailed questionnaire regarding their knowledge and experiences related to the lasting effects of cancer treatment.
The results of the study indicated that most patients were aware about how cancer treatment could affect their health in the long run. Many participants mentioned they were not properly informed about the lasting impact and are now dealing with issues, like heart problems, kidney issues, fertility challenges, changes in thinking and emotional struggles. In light of this situation, we believe it is essential to educate and empower patients to handle the long-term consequences of cancer. Patients should feel encouraged to ask questions, seek out information and stand up for their health concerns. Most patients who participated in this study reported that they would have found it helpful to have support from cancer organizations or online resources providing guidance on managing long-term health issues. We think that through collaboration patients and healthcare professionals can work together to create strategies that meet health needs and enhance the quality of life for cancer patients.
References
• Chua, G. P., Tan, H. K., & Gandhi, M. (2018). What information do cancer patients want and how well are their needs being met? Ecancermedicalscience, 12(873). https://doi.org/10.3332/ecancer.2018.873
• Epstein, R. M., & Street, R. L. (2007). Patient-centered communication in cancer care: Promoting healing and reducing suffering. National Cancer Institute. NIH Publication No. 07-6225. Bethesda.
• Ionescu, S., Madge, O. L., Robu, I., Brătucu, E., & Daha, C. (2021). Surgical Oncology in Romania: An Analysis of Research and Impact Based on Literature Search in PubMed and Web of Science. BioMed Research International, vol. 2021, Article ID 5528582, 7 pages. https://doi.org/10.1155/2021/5528582
• Jacobs, L. A., & Shulman, L. N. (2017). Follow-up care of cancer survivors: challenges and solutions. The Lancet. Oncology, 18(1), e19–e29. https://doi.org/10.1016/S1470-2045(16)30386-2
• Jacobsen, P. B., Donovan, K. A., Vadaparampil, S. T., & Small, B. J. (2007). Systematic review and meta-analysis of psychological and activity-based interventions for cancer-related fatigue. Health Psychology, 26(6), 660–667. https://doi.org/10.1037/0278-6133.26.6.660
• Janelsins, M. C., Kesler, S. R., Ahles, T. A., & Morrow, G. R. (2014). Prevalence, mechanisms, and management of cancer-related cognitive impairment. International Review of Psychiatry, 26(1), 102–113. https://doi.org/10.3109/09540261.2013.864260
• Madge, O. L., Marincaș, A. M., Daha, C., & Simion, L. (2023). Health information seeking behavior and decision making by patients undergoing breast cancer surgery: A qualitative study. Health Information & Libraries Journal, 1-12. https://doi.org/10.1111/hir.12480
• Madge, O.-L., & Robu, I. (2020). Implementing information literacy programs in Romanian Medical School - Still a Major Challenge. Qualitative and Quantitative Methods in Libraries, 9(2), 143–153. http://www.qqml.net/index.php/qqml/article/view/618
• McCorkle, R., Ercolano, E., Lazenby, M., Schulman-Green, D., Schilling, L. S., Lorig, K., & Wagner, E. H. (2011). Self-management: Enabling and empowering patients living with cancer as a chronic illness. CA: A Cancer Journal for Clinicians, 61(1), 50–62. https://doi.org/10.3322/caac.20093
• Mitchell, A. J., Ferguson, D. W., Gill, J., Paul, J., & Symonds, P. (2013). Depression and anxiety in long-term cancer survivors compared with spouses and healthy controls: a systematic review and meta-analysis. The Lancet Oncology, 14(8), 721–732. https://doi.org/10.1016/s1470-2045(13)70244-4
• Perazella, Mark A. “Onco-Nephrology: Renal Toxicities of Chemotherapeutic Agents.” Clinical Journal of the American Society of Nephrology, vol. 7, no. 10, 9 Aug. 2012, pp. 1713–1721, https://doi.org/10.2215/cjn.02780312
• Porumbeanu, O. L. (2009a). Is electronic always the right choice? Proceedings of ICML (the International Congress on Medical Librarianship "Positioning the Profession", Brisbane, Australia), August 31 - September 4, 2009. https://espace.library.uq.edu.au/data/UQ_179724/Wed_PorumbeanuPPT.pdf
• Porumbeanu, O.-L. (2009b). The impact of electronic resources and new technology in academic medical libraries in Romania. Health Information & Libraries Journal, 26(2), 151–155. https://doi.org/10.1111/j.1471-1842.2009.00845.x
• Porumbeanu, O. L., & Madge, B. (2009). Introducing the concept of consumer health information to Romania. Proceedings of the World Library and Information Congress "Libraries create futures: Building on cultural heritage", Milan, Italy, August 23-27, 2009. http://www.ifla.org/annual-conference/ifla75/programme2009-en.php
• Porumbeanu Madge, O. L. (2013). Medical libraries and information users in Romania in the digital age. Bucharest: University of Bucharest Publishing House
• Schmidt, M. E., Goldschmidt, S., Hermann, S., & Steindorf, K. (2022). Late effects, long‐term problems and unmet needs of cancer survivors. International Journal of Cancer, 151(8). https://doi.org/10.1002/ijc.34152
• Sumanu, A. (2023). Understanding the Role of Facebook Support Groups in Information Exchange for Cancer Patients in Romania. Qualitative and Quantitative Methods in Libraries, 12(3), 355–379. https://qqml-journal.net/index.php/qqml/article/view/833
• Sumanu, A., & Madge, O.-L. (2023). Health Literacy and its Impact on Cancer Care for Patients and Caregivers in Romania. Qualitative and Quantitative Methods in Libraries, 12(3), 381–402. https://qqml-journal.net/index.php/qqml/article/view/834
• Strongman, H., Gadd, S., Matthews, A., Mansfield, K. E., Stanway, S., Lyon, A. R., dos-Santos-Silva, I., Smeeth, L., & Bhaskaran, K. (2019). Medium and long-term risks of specific cardiovascular diseases in survivors of 20 adult cancers: a population-based cohort study using multiple linked UK electronic health records databases. The Lancet, 394(10203), 1041–1054. https://doi.org/10.1016/s0140-6736(19)31674-5
• Yi, J. C., & Syrjala, K. L. (2017). Anxiety and Depression in Cancer Survivors. Medical Clinics of North America, 101(6), 1099–1113. https://doi.org/10.1016/j.mcna.2017.06.005
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